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January 27th, 2010

LOOK: Connecting Breast Cancer Patients Globally

good By: Mallika Chopra of GOOD Magazine
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Vicki Tashman was a 44-year-old mother of two when she received her breast cancer diagnosis over the phone. Soon thereafter she began chemotherapy sessions to treat invasive Stage 1 cancer. In the weeks that followed, Tashman pursued all the suggestions of her doctors: she kept a regular journal, attended survivor support groups, interviewed several physicians for medical recommendations, and turned toward a close network of family and friends. In spite of these efforts, though, Tashman still felt that something was missing: the ability to personally connect with someone who knew exactly what she was going through.

“I took advantage of different support groups when I was going through my treatment,” Tashamn says. “But there was really no one there that was my age, with my type of cancer and treatment.”

It was the absence of this contact that inspired Tashman to create Pink-Link.org, the first online support network for breast cancer patients, survivors, and their families and friends.

Founded in 2005, Pink-Link has become a forum for survivors and for those currently undergoing breast cancer treatmen– a place to turn for emotional support, to discuss treatment options and side effects, and to find solace in what can be an isolating and physically arduous journey.

Though a wealth of medical information is now available on the web, putting a human face on such information can make a profound difference for a breast cancer patient who feels overwhelmed and alone. With Pink-Link, a newly diagnosed survivor can share her own specific breast cancer pathology and then search for other members with similar diagnoses and treatment plans.

As privacy is a matter of concern for anyone sharing medical information over the web, Tashman has developed a system that allows patients and survivors to register and communicate with one another without ever revealing their name, address, e-mail or other personal information. In addition to offering a personal blogging platform for members, Pink-Link also hosts a number of forums where survivors can ask questions to volunteer experts in nutrition, holistic health, physical training and skin care, in addition to a general forum for members to engage in dialogue with each other.

Now, nearly four years after its founding, Pink-Link boasts thousands of members in the U.S. and across the world– and thanks to individual donations, it remains a completely free and confidential service.

“I get emails almost every day from members saying thank you for creating this, and telling me about the people they’ve met through this site,” Tashman says. “I know people are really using it and getting the support they need.”

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Q&A: What’s So Funny About Intensive Care?

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Want better health? Build some belly laughs into your daily routine.

Hob Osterlund is a former Pain and Palliative Care Clinical Nurse Specialist who witnessed first-hand in her patients how entertainment can lift their spirits, reduce anxiety and give them courage to face their treatment. This inspired her to create and host the Chuckle Channel–a closed-circuit television comedy channel made specifically to play in hospitals and healthcare settings 24 hours a day for anyone in a hospital who needs a little rib tickling…

HobOsterlund_2As the Principle Investigator in research that explores how comedy relieves symptoms of pain, anxiety and fatigue, Osterlund is dedicated to the idea of bringing more humor to the hospital.

How do entertainment and comedy lift patients’ spirits and improve their well-being?

Virtually every day I see patients at The Queen’s Medical Center who tell me how specific films have lifted their spirits. We had one cancer patient recently who was so depressed he could barely muster the energy to interact with his healthcare providers. A nurse provided a specific comedy she thought might help. Once he watched it, he became more more communicative. In this case, it happened to be my own comedy character Ivy Push, RN. I think it helped him because he felt a connection with her, and because her schtick is about the absurdity of the hospital culture. Once you have a chance to laugh about that, you feel a little less isolated and a little less crazy.

What was your personal inspiration for creating and hosting the Chuckle Channel?

I initially began the Chuckle Channel at Queen’s in Honolulu because I believe in the magic of humor and I was able to get the rights from local comedians to show their films. After talking with countless patients, I had a bit of an epiphany— and I may be the very last person in the country to understand this concept: the television is not a THING on the wall, it’s a relationship. An intimate one. People in the hospital spend the night with it. They’re naked with it. They’re vulnerable to its images in every way. So if you’re scared and in pain in the middle of the night, you should have the option of watching something other than infomercials or bad news, both of which are essentially abusive. Their basic message is “You’re not good enough. Buy ______ and you’ll feel better.” So there would be an alternative message, I created a national Chuckle Channel to which all hospitals may subscribe.

I’d love to see uplifting comedy available in all healthcare settings. I’d also love to see the Chuckle Channel sponsored by a foundation or corporation. I’d love to be able to add many more films by artists from many cultures who are doing funny, clean and inclusive stuff. People with talent. I don’t care if they’re famous.

How can we bring more entertainment and comedy to hospitals to improve patient health?

Folk wisdom already supports laughter; so does the Bible. We all know how good it feels to laugh. We have research that helps us understand how and why it may help. If I had my way, there’d be a whole lot more comedy that’s not about rage, not disparaging, not divisive. We’re all in this blessed, blasted and bruised world together. Why not find a way to laugh about how impossible it all feels? Only then can we feel the relief we all so dearly need. Only then can we get creative with how enormous our challenges feel.

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